Special Treatment for the Special Boy

So this morning we took the kids to the mall to see Miss Rosa and the Dinosaur Train. I was going to go by myself with the 3 kids and Clarabelle (Luke's seizure alert dog) so Steve could work around the house. However, when Daddy found out Miss Rosa was going to be there he decided to go something about he thinks she is hot. After we arrived I realized I could have never done this alone and was very grateful daddy came no matter what his reason:) Luke couldn't sit still so him and I and Clarabelle just ended up walking around the mall visiting the booths while Daddy, Alex and Lily took in the show. Some days I wish we could all just sit like the other families and watch but Luke couldn't sit still for that long and would cry every time I stopped pushing the stroller. After the show was over a line formed to meet and greet Miss Rosa and Buddy the dinosaur. I told Alex and Lily I would wait with Luke and then they could join me cause it was a super long line. I tried twice to wait in line, Luke was crying and then I would take him out and he wanted to walk away from the line. I can barely hold him that long so I just kept lapping around the line waiting for the line to die down. After an hour or so of circling it was finally manageable so I went to get in line only to have the lady say the line was closed. I must have looked like I was going to cry and the lady looked at me and said "well let me see what I can do." I explained to her that it is very difficult to stand in line for anything that long with my son. She came back and said they will see us. A lady that must have been turned away right before me was standing there very upset and I heard her keep saying they told me the line was closed and then they let them in! She seemed less than thrilled that we got a turn and they didn't. For a moment I felt bad but just for a moment. It has taken me 3 years to get over feeling bad for "special treatment" that some people get offended by. I have family members who actually think it is unfair that we have a placard and get a "special parking spot" or "a make a wish trip." But all I have to say to them is I would trade the perks of this job to have a "normal" family situation any day. I would kill to not go out in public and have everyone ask about Clarabelle or notice Luke is different. It would give me no greater pleasure if Luke didn't ever have a very public long scary seizure in the middle of Chuck E Cheeses at a friends little girls birthday party stealing the spotlight from her special day leading the manager to invite us back on her! But for now I will take any special treatment I can get to try to give my family the normalcy that is taken away by the countless hospital stays, ER visits, and endless seizures that ruin the fun we should be having. So ask me if I care that you think it is unfair and my answer is "Hell NO! Do you want to trade situations that led us here to begin with?- I didn't think so!"